We moved the clocks back a few days ago which means we all got an extra hour of sleep and yet...I am wiped out. My meds schedule is off, my sleep is horrible and tonight I almost went to bed at 7pm thinking it was about 9:30. Does this happen to everyone? This happens every year for me and it takes a week or two to adjust. In time, I get used to it getting darker earlier and my mood jumps at the promise of cooler temperatures ahead. And before you know it...it will be spring, flowers will be blooming, temps will be rising... and it will be time to change the time again.
In a perfect world, a person with an illness or a disability would easily be able to get needed services and treatments. We do not live in a perfect world and often the healthcare system is littered with red tape. Patients or their care partners are tasked with jumping through hoops, waiting countless hours on hold with pharmacies or insurance companies, and waiting months to see specialists. I wish I had the solution to this problem but unfortunately, I only see it getting worse. You need to be an advocate for yourself. Here’s what has helped me: · Be persistent, be firm and be polite. · Call often. A squeaky wheel gets attention. · Stay on hold. It is frustrating but sometimes it is the only way. · If someone doesn’t have the answer you need, ask to speak with someone who does. · ...

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