We moved the clocks back a few days ago which means we all got an extra hour of sleep and yet...I am wiped out. My meds schedule is off, my sleep is horrible and tonight I almost went to bed at 7pm thinking it was about 9:30. Does this happen to everyone? This happens every year for me and it takes a week or two to adjust. In time, I get used to it getting darker earlier and my mood jumps at the promise of cooler temperatures ahead. And before you know it...it will be spring, flowers will be blooming, temps will be rising... and it will be time to change the time again.
If only we could live in a world where everyone put their innate talents and gifts together and worked to solve problems, we might have a world with less illness and suffering. It would also be a world with less multibillion dollar companies. I understand that people need to make a living and I also understand that competition between companies can sometimes spur new thought and development of ideas. I understand the need for regulations and standards for safety. I understand that all of this costs money. But when you are living day in and day out with a degenerating illness that has very few treatments, and no glimpse of a cure, you really don't give a darn about any of that. You just want to get better. You want to be able to trust that you are being given the best advice about the best treatment and you don't have time to wait for it. I will continue to dream about my ideal world but I expect that it will just stay a dream....

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