It took a while for me to get my confidence back after my PD diagnosis but I did get it back. I am a fighter and I am strong. I work really hard at staying healthy. When you are doing well, it is easier to deny your symptoms and think you are winning the battle.
I found out that it only takes one little thing to snatch that confidence back. For me it was a fall. I fell. I can't believe that I fell! Fortunately, other than a small bruise on my hand, I didn't get hurt. I was carrying a chair through a doorway while dressed in a slim skirt and heels. I admit now that it was a stupid idea. Of course, I had to do my less than graceful dance with the floor in front of a group of friends. I don't know if I caught my heel on the rug or if the chair threw me off balance. I guess it doesn't really matter. Someone without PD, would probably have shaken off their embarrassment and moved on. I felt my confidence being ripped out from under me once again. The insecurity of what this illness can do to me reared its ugly head. All night, I questioned myself. "Am I getting worse? Did my PD make me fall?" My rational side knows that anyone could have fallen doing what I was doing. The cold, hard reality is that I do need to be more careful. Like it or not, I have Parkinson's. I cannot afford an injury. If I get injured, I will have to scale back my exercise. Exercise helps keep my symptoms at bay and keeps my confidence up. So today, the day after my confidence bucket got dumped out all over the floor, I went back to the gym. I worked hard and I even kicked some ass. My confidence bucket is filling back up drop by sweaty drop. Hear that PD? You can't rob me of everything. I can do this hard thing and I will fight you every step of the way.
At the end of a year, it is common to look back and take stock of what has been working and what needs to change. This past year, 2024, marked the eight-year anniversary of my Parkinson’s diagnosis and the seven-year anniversary of being a dedicated, passionate, leader in my local Parkinson’s community. It also was my most difficult year living with the symptoms of Parkinson’s. I ended the year exhausted, sick with Covid, and beyond frustrated with the status quo of Parkinson’s treatments, and our current healthcare system. People with a neurodegenerative condition like Parkinson’s should not have to fight so hard to get treatments they need. Even with all the research being done, and money being spent, Parkinson’s remains the fastest growing neurological disorder. It is still progressive with no cure. We are still having to fight to ban substances that we know cause Parkinson’s. The scale has tipped for me this year. In 2025, I will spend more ...

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