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Self Advocacy in a World of Red Tape

In a perfect world, a person with an illness or a disability would easily be able to get needed services and treatments. We do not live in a perfect world and often the healthcare system is littered with red tape. Patients or their care partners are tasked with jumping through hoops, waiting countless hours on hold with pharmacies or insurance companies, and waiting months to see specialists. I wish I had the solution to this problem but unfortunately, I only see it getting worse. You need to be an advocate for yourself.  

Here’s what has helped me:

·      Be persistent, be firm and be polite. 

·      Call often.  A squeaky wheel gets attention.

·      Stay on hold.  It is frustrating but sometimes it is the only way.

·      If someone doesn’t have the answer you need, ask to speak with someone who does. 

·      When someone goes out of their way to help you, let them know it is appreciated.

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