Rock Steady Fighter

  This month's favorite resource is the  Aware in Care Kit  provided by the Parkinson's Foundation. The Aware in Care Kit is a hospital kit for people with Parkinson's. Unfortunately, many medical professionals in the hospital setting are not familiar enough with Parkinson's to understand the specific needs of a person living with PD. The Parkinson's Foundation notes that three out of four people with Parkinson's will not receive their medications on time when staying in the hospital and this can cause unnecessary complications. The kit contains fact sheets on the necessity of getting medications on time, a list of medications that may be contraindicated for people with Parkinson's, a Parkinson's ID bracelet, a hospital action plan and information for specific things like Duopa and DBS. It is recommended to keep a supply of your current medications in the bag to bring with you on any hospital stay. Medications must be current and in their original contai

  This month's favorite resource is  The New Parkinson's disease Treatment Book  by Dr. J. Eric Ahlskog. Dr. Ahlskog has more than 30 years of experience working with people with PD at the Mayo Clinic. His goal in writing this book is to educate patients so that they can partner with their doctors to get the best treatment. Unfortunately, in today's world, our time with our physicians is limited. By educating yourself, you can make the most of that time by knowing what questions to ask and what treatment options are available. This book will give you the general information, put in terms you can understand, so you and your physician can work out a treatment plan specific to you. If you just can't wait for next month to learn about other favorite resources, you can see Claire McLean of  Rogue PT & Wellness  and I discussing all our favorites  here .

  During our Jump Start seminar for those newly diagnosed, we discuss some of our favorite Parkinson's resources. There are some books and websites that provide clear, accurate information and are my “go to” places for the best information. Each month, we are going to be highlighting one of these resources as they are appropriate for everyone living with PD, not just those newly diagnosed. First up is the  Every Victory Counts   manual put out by the Davis Phinney Foundation. This is a free book that you can  download   at any time or  order online  and it will be mailed to you. Every Victory Counts  is a great jumping off point to get you started. You will find the basics about things like symptoms and medications mixed in with advice, tips, and worksheets to aid in daily living. There is also a great glossary in the back which can come in very handy especially when you are new to the PD world. Woven throughout the manual are stories that educate, inspire, and give hope. Contribut

Being cooped up in the house during the Covid Pandemic of 2020, led me to pursue some new hobbies, one of which was watercolor painting.  Having very limited artistic ability, I started making cartoons out of blobs of paint.  My process is evolving over time, I have added some digital art to the mix.  Some pieces have watercolor mixed with digital elements and some are fully digital created in Photoshop.  These cartoons have become a journal of my days living with Parkinson's.

  People with Parkinson's are often told to speak louder or speak with intention.  This is of course because Parkinson's can wreak havoc with our voices and make them soft and hoarse.  Maybe it is time for people with Parkinson's to get loud for another  reason. Over 200 years ago, James Parkinson wrote his essay called   Shaking Palsy   where he described Parkinson's.  Yes, scientists have been documenting and studying Parkinson's for a very long time.  We have been waiting too long for a cure or at the very least, a treatment that will slow this beast down or stop it in its tracks.  No one seems to know why it is taking so long. Other diseases have received more funding and attention and have gotten results faster.  No one is saying that the people with those diseases aren't deserving of treatments.  We all want health and healing.  I do wonder why funding for Parkinson's from the NIH is going down each year while the number of people being diagnosed is go

  Forgive me for the lengthy post;  when looking back at this year, I guess I have a lot to say. When 2020 started, I was very excited about the things going on in the Parkinson’s community in Orange County. There were multiple support groups meeting every week and the number of fitness classes was growing from one end of the county to the other. Educational events and outings were filling our calendars. Our small group at PD Buzz was busy trying to reach people with PD and keep them connected to all that was happening. And then came COVID and put a screeching halt to almost everything...at least for a little while. It didn’t take long for the leaders in the PD community worldwide to jump into action. Knowing how detrimental isolation and a sedimentary lifestyle can be for those with Parkinson’s, these professionals quickly adapted and started holding groups and classes online. We all learned a new meaning to the word “zoom.” Our living rooms and garages quickly became gyms and we welc