From the Michael J. Fox Foundation: “On July 28, 2022, the U.S. House of Representatives introduced the first-ever legislation solely devoted to ending Parkinson’s disease . The National Plan to End Parkinson’s Act (H.R.8585) will go through the traditional congressional process and will need to be voted on by the House. In case you haven’t yet, send an email asking your Representative to show their support by becoming a co-sponso r .” From Lauren at PD Buzz: This legislation is historic for the Parkinson's community and is the result of much work by the advocacy group at the Fox Foundation. The letter is already written for you . It only takes a couple of minutes to add your information, personalize it and hit the send button. I am urging you all to help this pass by letting your representatives know this is important to you. Please share this information with friends and family and ask them to do the same. I know we all want to find better treatments and a cure for Parkinso
This month's favorite resource is the Aware in Care Kit provided by the Parkinson's Foundation. The Aware in Care Kit is a hospital kit for people with Parkinson's. Unfortunately, many medical professionals in the hospital setting are not familiar enough with Parkinson's to understand the specific needs of a person living with PD. The Parkinson's Foundation notes that three out of four people with Parkinson's will not receive their medications on time when staying in the hospital and this can cause unnecessary complications. The kit contains fact sheets on the necessity of getting medications on time, a list of medications that may be contraindicated for people with Parkinson's, a Parkinson's ID bracelet, a hospital action plan and information for specific things like Duopa and DBS. It is recommended to keep a supply of your current medications in the bag to bring with you on any hospital stay. Medications must be current and in their original contai